Biobanks

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores: the interrelated conditions needed for a biobank to be created and to exist the rise of the new bio-economy the redefinition of citizenship accompanying national biobank developments This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.

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  • Author : Herbert Gottweis
  • Publisher : Routledge
  • Pages : 236 pages
  • ISBN : 1134090269
  • Rating : 4/5 from 21 reviews
CLICK HERE TO GET THIS BOOKBiobanks

Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release : 28 April 2008
GET THIS BOOKBiobanks

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and

Reciprocity in Population Biobanks

Reciprocity in Population Biobanks
  • Author : Ma’n H. Zawati
  • Publisher : Academic Press
  • Release : 22 September 2021
GET THIS BOOKReciprocity in Population Biobanks

Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era begins by discussing how current judicial interpretation keeps standard of disclosure at the core of genomic research. The book then outlines multiple limitations individualistic autonomy faces in the context of gene and population biobanks, including an analysis of the complexities of benefit considerations in the research setting. Second, the book explores how individualistic autonomy fails to acknowledge the multilateral relationships implicated in genomic research, including

GDPR and Biobanking

GDPR and Biobanking
  • Author : Jane Reichel,Santa Slokenberga,Olga Tzortzatou,Springer Nature
  • Publisher : Springer Nature
  • Release : 19 August 2022
GET THIS BOOKGDPR and Biobanking

Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II GDPR and European responses -- Biobank governance and the impact of the GDPR on the regulation of biobank research -- Controller' and processor's responsibilities in biobank research under GDPR -- Individual rights in biobank research under GDPR -- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research

Biobanking

Biobanking
  • Author : William H. Yong
  • Publisher : Humana Press
  • Release : 14 December 2018
GET THIS BOOKBiobanking

This volume not only discusses various common biobanking topics, it also delves into less-discussed subjects such as what is needed to start a biobank, training of new biobanking personnel, and ethnic representation in biospecimen research. Other chapters in this book span practical topics including: disaster prevention and recovery; information technology; flora and fauna preservation including zoological fluid specimen photography; surgical and autopsy biobanking; biobanking of bodily fluids; biosafety; cutting frozen sections; immunohistochemistry; nucleic acid extraction; and biospecimen shipping. Written in

Biobanks

Biobanks
  • Author : Antonella De Robbio
  • Publisher : Woodhead Pub Limited
  • Release : 19 August 2022
GET THIS BOOKBiobanks

Biobanks represent an invaluable research tool and, as a result of their intrinsic and extrinsic nature, may be looked upon as archives or repositories largely made up of libraries, or collections of content where the content is the biological material derived from different individuals or species, representing valuable tangible assets. Biobanks analyses aspects of the commons and common intellectual property relating to the concepts of private property, not only concerning data but biological materials as well, and the advantages and

Population Biobank Studies: A Practical Guide

Population Biobank Studies: A Practical Guide
  • Author : Zhengming Chen
  • Publisher : Springer Nature
  • Release : 09 December 2020
GET THIS BOOKPopulation Biobank Studies: A Practical Guide

This book describes some of the key epidemiological principles, scientific approaches and quality assurance frameworks required to design and conduct biobank studies in various settings. Using examples from contemporary biobanks, the book addresses the design features and practical procedures needed in order to launch and manage biobank studies, including consent and regulatory approval, the organisation of field work, management of data and biological samples, follow-up and verification of disease outcomes, development of IT systems for data collection, quality assurance and

Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release : 28 April 2008
GET THIS BOOKBiobanks

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and

Governing Biobanks

Governing Biobanks
  • Author : Jane Kaye,Susan Gibbons,Catherine Heeney,Andrew Smart
  • Publisher : Bloomsbury Publishing
  • Release : 03 February 2012
GET THIS BOOKGoverning Biobanks

Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current

Comparative Issues in the Governance of Research Biobanks

Comparative Issues in the Governance of Research Biobanks
  • Author : Giovanni Pascuzzi,Umberto Izzo,Matteo Macilotti
  • Publisher : Springer Science & Business Media
  • Release : 30 January 2013
GET THIS BOOKComparative Issues in the Governance of Research Biobanks

In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent”

Governing Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks
  • Author : Rajam Neethu
  • Publisher : Kluwer Law International B.V.
  • Release : 21 June 2019
GET THIS BOOKGoverning Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and collaborations. This new paradigm offers new legal challenges for commercial involvement particularly within a publicly funded setting. In this innovative book, the author shows that securing maximum social benefit out

Human Genetic Biobanks in Asia

Human Genetic Biobanks in Asia
  • Author : Margaret Sleeboom-Faulkner
  • Publisher : Routledge
  • Release : 19 November 2008
GET THIS BOOKHuman Genetic Biobanks in Asia

This volume investigates human genetic biobanking and its regulation in various Asian countries and areas, including Japan, Mainland China, Taiwan, Hong Kong, India and Indonesia.. It sheds light on how cultural, socio-political and economic factors influence the set-up of bioethical regulation for human genetic biobanks and how bioethical sensitivities surrounding biobanks are handled. Apart from placing discourses of trust in an international perspective, the comparative materials presented in this volume also put into perspective the concepts of genetic theft and

Biobanking of Human Biospecimens

Biobanking of Human Biospecimens
  • Author : Pierre Hainaut,Jim Vaught,Kurt Zatloukal,Markus Pasterk
  • Publisher : Springer
  • Release : 06 June 2017
GET THIS BOOKBiobanking of Human Biospecimens

This volume is the first comprehensive text on human biobanking, authored by scientists and regulatory officers who have led the field over the past 10 years. It covers biobanking issues and its importance in advancing the field of research in cancer, cardiovascular, metabolic, and other diseases. Biobanks of human specimens have become the cornerstone for research on human health that harnesses the power of “omics” technologies to identify biomarkers for disease susceptibility. Biobanks are an essential component of the development of

Common Minimum Technical Standards and Protocols for Biobanks Dedicated to Cancer Research

Common Minimum Technical Standards and Protocols for Biobanks Dedicated to Cancer Research
  • Author : International Agency for Research on Cancer
  • Publisher : IARC Technical Reports
  • Release : 08 May 2017
GET THIS BOOKCommon Minimum Technical Standards and Protocols for Biobanks Dedicated to Cancer Research

Biobanking has developed at a rapid pace in recent years, initiated by the drive for personalized medicine and the need for high-quality biological resources, associated data for scientific research, and technological advancement of analytical platforms for molecular and genetic research. This book includes guidelines and recommendations for biobanks not only in high-income countries but also in low- and middle-income countries (LMICs). The recommendations are based on validated and/or evidence-based guidelines. The book also includes sections on sample sharing, ethical,