Biobanks and Tissue Research

The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.

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  • Author : Christian Lenk
  • Publisher : Springer Science & Business Media
  • Pages : 238 pages
  • ISBN : 9789400716735
  • Rating : 4/5 from 21 reviews
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Biobanks

Biobanks
  • Author : Antonella De Robbio
  • Publisher : Elsevier
  • Release : 26 November 2012
GET THIS BOOKBiobanks

Biobanks represent an invaluable research tool and, as a result of their intrinsic and extrinsic nature, may be looked upon as archives or repositories largely made up of libraries, or collections of content where the content is the biological material derived from different individuals or species, representing valuable tangible assets. Biobanks analyses aspects of the commons and common intellectual property relating to the concepts of private property, not only concerning data but biological materials as well, and the advantages and

Biobanks and Tissue Research

Biobanks and Tissue Research
  • Author : Christian Lenk,Judit Sándor,Bert Gordijn
  • Publisher : Springer Science & Business Media
  • Release : 30 July 2011
GET THIS BOOKBiobanks and Tissue Research

The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and

Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release : 28 April 2008
GET THIS BOOKBiobanks

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and

Governing Biobanks

Governing Biobanks
  • Author : Jane Kaye,Susan Gibbons,Catherine Heeney,Andrew Smart
  • Publisher : Bloomsbury Publishing
  • Release : 03 February 2012
GET THIS BOOKGoverning Biobanks

Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current

New Challenges for Biobanks

New Challenges for Biobanks
  • Author : Kris Dierickx
  • Publisher : Intersentia Uitgevers N V
  • Release : 09 May 2021
GET THIS BOOKNew Challenges for Biobanks

The book is a collection of papers presented during an international conference, held in Leuven May 18-20, 2009, organized by the Centre for Biomedical Ethics and Law of the Catholic University of Leuven and the GeneBanC project.

Biobanks in Europe

Biobanks in Europe
  • Author : Anonim
  • Publisher : Unknown Publisher
  • Release : 09 May 2021
GET THIS BOOKBiobanks in Europe

Biobanks (i.e. the organised collections consisting of biological samples and associated data, have gained great significance for research and personalised medicine) are increasingly recognised as a crucial infrastructure for research. However, at the same time the widely varied practices in biobanking regarding for example collection, storage and consent procedures may also pose a barrier to cross-border research and collaboration by limiting access to samples and data. In this context the limited sharing and linkage of samples is a key

Human Genetic Biobanks in Asia

Human Genetic Biobanks in Asia
  • Author : Margaret Sleeboom-Faulkner
  • Publisher : Taylor & Francis
  • Release : 14 November 2008
GET THIS BOOKHuman Genetic Biobanks in Asia

This volume investigates human genetic biobanking and its regulation in various Asian countries and areas, including Japan, Mainland China, Taiwan, Hong Kong, India and Indonesia.. It sheds light on how cultural, socio-political and economic factors influence the set-up of bioethical regulation for human genetic biobanks and how bioethical sensitivities surrounding biobanks are handled. Apart from placing discourses of trust in an international perspective, the comparative materials presented in this volume also put into perspective the concepts of genetic theft and

Comparative Issues in the Governance of Research Biobanks

Comparative Issues in the Governance of Research Biobanks
  • Author : Giovanni Pascuzzi,Umberto Izzo,Matteo Macilotti
  • Publisher : Springer Science & Business Media
  • Release : 30 January 2013
GET THIS BOOKComparative Issues in the Governance of Research Biobanks

In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent”

Ethical Issues in Governing Biobanks

Ethical Issues in Governing Biobanks
  • Author : Alexander M. Capron,Nikola Biller-Andorno,Professor Alexandre Mauron,Professor Bernice Elger
  • Publisher : Ashgate Publishing, Ltd.
  • Release : 28 February 2013
GET THIS BOOKEthical Issues in Governing Biobanks

Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the

Common Minimum Technical Standards and Protocols for Biobanks Dedicated to Cancer Research

Common Minimum Technical Standards and Protocols for Biobanks Dedicated to Cancer Research
  • Author : International Agency for Research on Cancer
  • Publisher : IARC Technical Reports
  • Release : 08 May 2017
GET THIS BOOKCommon Minimum Technical Standards and Protocols for Biobanks Dedicated to Cancer Research

Biobanking has developed at a rapid pace in recent years, initiated by the drive for personalized medicine and the need for high-quality biological resources, associated data for scientific research, and technological advancement of analytical platforms for molecular and genetic research. This book includes guidelines and recommendations for biobanks not only in high-income countries but also in low- and middle-income countries (LMICs). The recommendations are based on validated and/or evidence-based guidelines. The book also includes sections on sample sharing, ethical,

Biobanks

Biobanks
  • Author : Clare Wenham
  • Publisher : Unknown Publisher
  • Release : 09 May 2021
GET THIS BOOKBiobanks

Biobanks are repositories of biological samples, physical measurements and outcome and behavioural data collected for research, clinical practice or public health monitoring. Most biobanks are established to investigate the common determinants of mortality and morbidity. This briefing updates POSTnote 180 and summarises biobank activity in the UK and the legal, ethical and practical issues.

Principles and Practice in Biobank Governance

Principles and Practice in Biobank Governance
  • Author : Mark Stranger
  • Publisher : Routledge
  • Release : 15 April 2016
GET THIS BOOKPrinciples and Practice in Biobank Governance

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges.

Biobanks Information Paper

Biobanks Information Paper
  • Author : National Health and Medical Research Council (Australia)
  • Publisher : Unknown Publisher
  • Release : 09 May 2021
GET THIS BOOKBiobanks Information Paper

The National Health and Medical Research Council (NHMRC) has developed this Biobanks information paper to provide information relevant to the establishment, management and governance of biobanks in Australia. For the purposes of this information paper, a biobank is defined as a generally large collection of human biological materials (biospecimens) linked to relevant personal and health information and held specifically for use in health and medical research. The primary focus of this information paper is on biobanks falling within this definition,

Governing Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks
  • Author : Rajam Neethu
  • Publisher : Kluwer Law International B.V.
  • Release : 21 June 2019
GET THIS BOOKGoverning Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and collaborations. This new paradigm offers new legal challenges for commercial involvement particularly within a publicly funded setting. In this innovative book, the author shows that securing maximum social benefit out